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ARO in the Community

August 8, 2010
Autism Action Evening
An ARO and Abilities Church event
6 p.m. to 7:15 p.m.
190 Railside Rd., Toronto
Directions: 3 lights west of Victoria Park Ave., off of Lawrence Ave., on the southeast corner
Learn more/RSVP: sharon@autismresolutionontario.com

Barry II was diagnosed with PDD-NOS Autism just before his third birthday. On April 11, 2009, we went past our two-year anniversary on the IBI wait list.

Barry’s mom quit her job to be Barry’s lead therapist/program director/administrator, and every asset we have has been liquidated to pay for therapy, the annual cost of which is $50,000. In the two years that Barry has been receiving therapy (entirely self-funded), he has grown from a child who was disconnected from reality, to one who can now express his wants verbally and has the independence for self-care (dressing, feeding and toileting). Barry’s gains would not have occurred without therapy.

Our family was featured on W5 last year, and our story can be seen via the following link: http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20080509/WFIVE_on_brink_080510/20080510?hub=WFive

The “funniest” experience so far on the waitlist (for us) has been the conclusion statement of the letter we received confirming Barry’s eligibility for funded therapy: “Beginning therapy as soon as possible and as early as possible is critical for the best success. Please be advised that the wait time for receiving therapy is 24 to 36 months.”

Barry was finally accepted into the government's IBI program in the summer of 2009, after 28 months of waiting.